After two rounds of whole brain radiation, they are letting me go home today. I cannot wait to sleep in my own bd. I'll need to come back to Hershey every day (except the weekends) for next two weeks to receive the other 8 doses. Once I've completed the full set of radiation treatments, they will taper me off of the steroids, and I will resume immunotherapy infusions. At least that is the current plan.
The radiation makes me tired right now. We won't know the full extent of the side effects until a few weeks after I'm done. I've been told that there could be hair loss , short term memory problems, and possible cognitive impairment.
Thank you for your continued support and love.
Emily, it is great to hear that you will be going home! Hope you can get some good rest. You are constantly in my thoughts and my prayers!
Luv ya! Nancy